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On the night of a debutante ball, events set in motion an
emotive and intimate portrayal of the revelation of a life
changing condition. Anna Magdalene plunges deep into a
personal maelstrom that is both tender and hard-hitting as
it explores the hidden recesses of social understanding of
her condition, Friedreich’s Ataxia.
On the quest for healing, Anna embarks on brave and
sometimes strange journeys of enlightenment to free
herself from the bonds of her condition. In one of these
adventures she stumbles on an unexpected answer that
brings a true light in the most disarming way, changing
her whole view of what freedom is.
Simultaneously, she discovers a mutual hope to join life
again and a way to live with her condition, ‘Fred’, while
she must.
About the Author
My name is Anna. I have a lethal neurological disorder,
Friedreich’s Ataxia, that I wish to be free of. I have
spent the last twenty-one years being forced to give my
personal life to carers to look after me. At twenty-one
years I had a major car accident and was left in a
wheelchair. Ever since I got into the wheelchair, I have
been trying to get out of it.
Now there is some hope in stem cell transplants, which I
believe may help to heal my damaged nerves and cells. I am
using my autobiographical writing and poetry to fundraise
for stem cell treatment. When I am better, I want to be a
carer, because that’s what I know most, as I study to
become a doctor so that I can help other people with
disabilities.
I hope that everyone can help me. Any donations are
helpful too. My friends and I have created a website so
that people can donate. I have one brother with the same
disorder. If I get well, I will recommend the treatment to
him and my twenty-one year old son who lives with autism,
and whom I would love to help.
You can contact me via the form below or visit my
website:
or on Facebook:
https://www.facebook.com/people/Anna-Magdalene-Handley/100006839809384
or if you'd like to contribute to my Stem Cell Fund, at
Gofundme:
http://www.gofundme.com/jfcy9c
Make Contact
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